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"ME causes symptoms of varying severity and can be very debilitating in children and young people," she says. "We frequently see children who are very severely affected and unable to get out of bed. The guideline provides useful advice on how to diagnose children with suspected ME and makes it clearer when a child or young person should be referred to a specialist service. Although there is no known drug to treat or cure the condition, clinicians can provide practical help to individuals such as advice on managing activity, rest periods, sleep patterns, diet, equipment to help maintain independence and advice and support with education."
It is estimated that ME affects 193,000 in the UK and in August last year the National Institute for Health and Clinical Excellence (NICE) launched long awaited guidelines on its diagnosis and management.
"Treatment is initially once a week and the frequency gradually reduces over time.
"It can take a few weeks or months to see an improvement but most people begin to feel the Nike Huarache Pink And Black
Meanwhile, Nicole is convinced that it is thanks to the Perrin technique that both her daughters have recovered so well.
"After six months of treatment Imogen could start reading again and we could go out together as a family it was then that she was able to restart her education and the tutoring service began an hour a day with her.
ï»¿Unlocking secrets of ME
"Once the toxins are out of the brain it will start working better and eventually the body will follow suit.
"I took her to the doctors about six times. He could find nothing, but she went downhill so quickly it was frightening she became a different person altogether. We'd find her scrabbling around in the bottom of the bed doing low moaning because she was in agony, half conscious and hallucinating with bad vivid dreams. Every other night she'd wake up in a cold sweat with palpitations and shaking uncontrollably. Eventually it got to the stage where she couldn't get dressed and come downstairs."
"It was heartbreaking for us. We didn't understand the illness so we could never really expect friends and family to.
The ME Association suggests that an early diagnosis together with adequate rest during the acute phase and during any relapse appear to bring the most significant improvement.
Consultant Paediatrician, Dr Esther Crawley, was part of the guideline development group working towards making access to treatments more available within the NHS.
is far from perfect at least there is now a recognition that this, often controversial condition, is indeed very real.
from the central nervous system it should drain out but it's draining back into the system causing toxins to build up in the brain and the spine. What our treatment does is to reverse that we increase the drainage of the lymphatics by manual massage techniques, gentle manipulation, very gentle movements of the spine and cranial treatments which stimulate the fluid around the brain.
The Perrin Technique is based on the belief that ME is a physical disorder that leads to a build up of toxins within the brain and the spine. It uses definite physical signs to diagnose the condition and treats it by improving the drainage of toxins from the central nervous system.
"I've discovered with ME that there is a backflow of drainage of lymph Huarache Nike Black Women
Imogen had many of the associated symptoms of ME such as severe and debilitating fatigue, painful muscles and joints, disrupted sleep, gastric problems, headaches and poor concentration. However, diagnosis still proved difficult.
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Dr Perrin explains: "It such a baffling disorder because it's not one bug or virus that causes it it's much deeper than that. I think that I've come up with some answers and we are getting there, bit by bit.
However, here in Manchester, pioneering work led by osteopath, Raymond Perrin, seems to be leading towards a more specific diagnosis and treatment.
Nicole Roberts Morris is one of hundreds of thousands who know differently. The mum of three from Bollington watched the condition transform her daughter, Imogen from a happy go lucky 11 year old into a pale shadow of her former self and, sometime later, the same thing happen to her younger daughter, Lena.
"Imogen had a bit of a back problem, which we couldn't get to the bottom of, but other than that she was a fit and healthy 11 year old," Nicole remembers. "She was the fastest runner in her class and was about to take grade three on the cello. Then her teacher said Imogen didn't seem to be able to concentrate in class and Imogen herself started complaining that she couldn't think straight or run around the playground any more.
benefit within a month."
"ME is a very real physical problem. There are physical signs of it tender points in the chest and abdomen, areas of the spine that are not normal shape and the cranial rhythm the fluid drainage is very dysfunctional. Everything is very congested and tight.
Clinical research at the University of Salford has seen hundreds of ME sufferers helped though the Perrin Technique. Now further research is underway at the University of Central Lancashire, to include a larger clinical trial looking at diagnosis of the illness.
"You worry about what people might think, but in the end you just see your child getting better and think: Great!'"
Nicole feels that perhaps she was more prepared than some because her brother had suffered with the condition in his early 20s following a bout of glandular fever. Nevertheless, it was still a desperate and frustrating time for all the family.
The cause of the condition is still uncertain and diagnosis remains problematic because the symptoms are similar to those present in several other medical conditions. There are also currently no examination findings which can confirm a diagnosis, no accepted cure and no universally effective treatment.
"Both Imogen and Huaraches White And Pink Lena were given blood tests to rule out other illnesses, but doctors said to both of them, 'There is absolutely nothing we can do to help you you'll get better in your own time.'"
After being out of school for five years, Imogen, now 18, is studying for her A levels at the same time as the rest of her peer group and Lena, 15 is also back in school full time, working towards her GCSEs.
"Imogen was out of school for five years and Lena for two. When Imogen was getting better people would see her out and think, What's she doing?' But they wouldn't see how she was when she came back home. I suppose that caused a lot of doubt in people's minds Why was she having a tutor at home when she could go to the park and enjoy herself? She should be in school.'
"She still has to pace herself. But she is managing it and sees Raymond every three months to keep her spine in balance so the drainage works quite well.
Currently diagnosis is made through a process of elimination.
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